I asked to have grab bars installed in my bathroom today.
I should have done it right after we first moved in two years ago...but I am a prideful person and didn't want to admit that I need them.
Maybe when I fell out of the shower last summer and bashed my back against the toilet, that might have been a good sign it was time to ask.
Or the fact that when I close my eyes, I have pretty much no sense of balance and need to hold on to something or else I start tipping over. Well, even with my eyes open, it's not much better. Sometimes my balance just suddenly dissipates , and I need to grab hold of something solidly anchored to prevent a face-plant.
Either way, I finally swallowed my pride and stopped by the apartment complex office today, fighting anxiety that I would have to fight to get what I need or provide a lengthy justification. But it was surprisingly.... easy. The office manager didn't even bat an eye, just put in an order for the maintenance guy to install the grab bars. Her response was really kind: "Oh, we've put in plenty of those. We probably have some on hand already, so it shouldn't take too long to get them installed."
I don't know what I was expecting really (the front office here is always so helpful and quick to take care of problems), but all the anxiety rushed out of me like a deflating balloon, and I immediately felt so much lighter.
I guess there's a part of me that always expects people to not be helpful or understanding, that their response will be something along the lines of, "Why? You don't look sick." I expect to be shot down rather than supported.
Maybe some of that comes from living in denial for so long about my health. I mean, I know I'm sick and have physical disabilities, but for the last 12 years there's always been a part of my brain that just hasn't accepted it. That side of me held to the belief that the next test or specialist or clinic would reveal my illness was an easily fixable problem, and I would be healthy and whole again. Not held back by weakness and fatigue, or having to plan my days based on how tired I am, or scrapping plans midday because my energy just took a nosedive. There was that voice in my head that said I didn't have to deal with any of this, because eventually it would just go away and I could go back to being healthy and normal.
And I think it's finally hit me and truly sunk in that I am sick and it isn't ever going to go away. I have an undiagnosed form of neuropathy, and I've been waiting for that magical diagnosis for more than a decade to fix everything...but I have to deal with this in the here and now; I can't keep waiting for "someday when I know what's wrong with me" to take charge of my health. Because there isn't some fairy godmother/doctor who is going to appear, wave their magic wand and make it all better. If I'm going to take better care of myself this year and be a stronger advocate for what I need, I have to be realistic about my health and what I can and cannot do.
I should have done it right after we first moved in two years ago...but I am a prideful person and didn't want to admit that I need them.
Maybe when I fell out of the shower last summer and bashed my back against the toilet, that might have been a good sign it was time to ask.
Or the fact that when I close my eyes, I have pretty much no sense of balance and need to hold on to something or else I start tipping over. Well, even with my eyes open, it's not much better. Sometimes my balance just suddenly dissipates , and I need to grab hold of something solidly anchored to prevent a face-plant.
Either way, I finally swallowed my pride and stopped by the apartment complex office today, fighting anxiety that I would have to fight to get what I need or provide a lengthy justification. But it was surprisingly.... easy. The office manager didn't even bat an eye, just put in an order for the maintenance guy to install the grab bars. Her response was really kind: "Oh, we've put in plenty of those. We probably have some on hand already, so it shouldn't take too long to get them installed."
I don't know what I was expecting really (the front office here is always so helpful and quick to take care of problems), but all the anxiety rushed out of me like a deflating balloon, and I immediately felt so much lighter.
I guess there's a part of me that always expects people to not be helpful or understanding, that their response will be something along the lines of, "Why? You don't look sick." I expect to be shot down rather than supported.
Maybe some of that comes from living in denial for so long about my health. I mean, I know I'm sick and have physical disabilities, but for the last 12 years there's always been a part of my brain that just hasn't accepted it. That side of me held to the belief that the next test or specialist or clinic would reveal my illness was an easily fixable problem, and I would be healthy and whole again. Not held back by weakness and fatigue, or having to plan my days based on how tired I am, or scrapping plans midday because my energy just took a nosedive. There was that voice in my head that said I didn't have to deal with any of this, because eventually it would just go away and I could go back to being healthy and normal.
And I think it's finally hit me and truly sunk in that I am sick and it isn't ever going to go away. I have an undiagnosed form of neuropathy, and I've been waiting for that magical diagnosis for more than a decade to fix everything...but I have to deal with this in the here and now; I can't keep waiting for "someday when I know what's wrong with me" to take charge of my health. Because there isn't some fairy godmother/doctor who is going to appear, wave their magic wand and make it all better. If I'm going to take better care of myself this year and be a stronger advocate for what I need, I have to be realistic about my health and what I can and cannot do.
I think the last 12 years have been me slowly making my way
through the five stages of grief. I've cycled through the first four--denial,
anger, bargaining, depression--for years, but haven't ever truly gotten towards
acceptance up until now. Just because I've been able to talk about my health
more openly in recent years doesn't mean I had truly come to terms with it. I
can have a normal conversation about what my illness entails and not fall apart
sobbing on someone, but that doesn't mean I'm anywhere close to okay with it.
I can't advocate for myself effectively if I'm not honest
about what my needs are. I need to admit my weaknesses and disabilities, because
how can I improve my daily life otherwise? I use leg braces to support my legs
and feet, which keeps my hips and back better aligned than if I was limping
around. I have handicap parking to save energy, especially in the winter when it's
cold and icy and it's easy for me to slip in slushy parking lots. I get massage
therapy and chiropractic care every three weeks to help maintain my muscle
strength and keep my back in good shape. I take my vitamins every day,
especially Vitamin D in the winter, because it helps my body function well. I'm
trying to eat healthier: this month I added green smoothies to my diet, because
it improves my energy levels and gives my body good fuel to run on. I pay
attention to my energy levels so I don't over exert myself and get sick. And
today I asked to have grab bars installed in my bathroom.
Because I can't keep living in denial.
